How to Interview Someone Who Is Terminally Ill: Part One

Over the years I’ve recorded the life stories of a number of terminally ill people. I’m also a Hospice volunteer. I’ve learned some things through my work and hope these tips may be useful if you’re  working with someone gravely ill.

  • Negotiate how much time your subject feels he/she can handle in any one interview.
  • Carefully monitor the strength of your subject while conducting the interview. If you sense he/she is fading, ask if you should stop or continue.
  • People at the end of life can’t always be at their “charming best”.  If you find that you’re sometimes met with sharpness or even anger, don’t take it personally. It’s not about you.
  • Be calm and mindful with a terminally ill person even if you’re not.
  • Time is of the essence. Cover the most important topics first. You may not have time to complete the whole story.
  • If you can’t find a quiet space and must be in a room with others, check with your subject about confidentiality. He/she may feel uncomfortable talking if others can listen in.
  • Some medications can make people forgetful so make sure you know what material you’ve  covered. You may need to remind your subject that he/she has already spoken on a particular topic.
  • Your subject may have difficulty hearing. Remember to sit close  – no more than 3 feet away and to speak clearly and with sufficient volume to be heard.
  • Be flexible. Don’t be surprised if an interview session you’ve arranged has to be canceled at the last minute. A terminally ill patient’s condition can change dramatically in a short period of time.
  • Take care of yourself. Working with someone who is dying is emotionally draining. Make sure you do things that bring you nourishment and strength, such as listening to your favorite music, meditating, doing a vigorous workout, or taking a long relaxing bath.

Photo by kenna takahashi

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6 Responses to How to Interview Someone Who Is Terminally Ill: Part One

  1. Dan,
    Thanks for the helpful post. I could have used it this summer when a friend went to hospice.

    Beth
    http://onestoryatatime.blogspot.com

  2. Dan,
    I am also a hospice volunteer, and along with the bereavement coordinator, we shall begin conducting video interviews at a nursing home. Thank you for your tips.
    God Bless

    Elon

    • @Elon I’m glad I was able to offer some help. All the best with your interview program. It is such a worthwhile activity. At Victoria Hospice we are conducting our second year of audio interviews for patients registered with hospice. I’m hoping that it will eventually become a permanent service. If I can be of any further help please don’t hesitate to contact me at my e-mail address.

      Regards,

      Dan

  3. Dan, I ran across this blog again from your list of the top posts and I’d have to say (again) that your perspective and advice about interviewing someone terminal is abslutely right. Thanks for sharing.

  4. @Beth LaMie. Thanks, Beth. Appreciate your comments.

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